Half Term

I haven’t been able to blog for a while as it’s been half term and that can always keep us busy.  Well normally in half term we put Oliver into a football club to help him have routine and doing something he loves, this half term we choose to let Oliver chill out at home as he had been doing so much sport this last term we thought he his body would like some time off.

I think we were wrong, Oliver although he chilled out a lot and he was good, he missed have the routine and something to do each day.   He got bored very quickly, we did lots of dog walks to go out with the football and he even got his scooter back out this week which was lovely to see.  I don’t think his body liked not doing any sport either, and by yesterday Oliver was looking really down and fed up which he had been like that most of the holiday, but sometimes it takes us parents a while to workout what is going on when your child can’t explain anything to you.

One sure fire way to help was his dad was going to go for a run yesterday and Oliver wanted to go with him, and yet again he loved it and come back feeling much better.  So note to self book a football club in future holidays.

I am luckily that Oliver has an xbox but he isn’t happy playing on it for hours on end or his Ipad and that he would rather be so active.

One good thing too was he did some good homework, I gave him his tablet to do this to help and he had to do a drawing of Elizabeth 1, he did a good job and it was great for me to see him on his tablet and how it helps/doesn’t help.    We don’t medicate at home other than for clubs after school this is due to wanting Oliver to eat to help with his weight as his tablet can suppress his appetite.  So when I go to CAMHs I can’t always give the feed back on how he is and have to hope school are giving the right information.  Thankfully I have no concerns with his tablet at the moment 🙂

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When something goes right

A proud moment here, my son as you have seen from other posts loves football more than anything else.   To help keep in happy and active in the holidays he generally does a football holiday camp with Chelsea FC foundation, I have to say I loved them amazing coaches who go above and beyond with all children.  My son today was awarded the Head Coach Player of the week trophy today for giving it his all for the last four days.    He is so happy its unreal and really proud of himself and its helped his confidence today as well.  He always comes home having had a really good day, going over skills and then mini games in the afternoon, he’s always hot and sweaty from working so hard, but it shows that even with additional needs our children can still shine in a mainstream holiday camp.  He even does their invitation only club on a Friday evening and I am sure when he is back after half term he will go in with a little more confidence 🙂

 

Also on a positive note had to go to the GP for a referral to OT as school had requested it and the GP has done the referral for us. (yepiee) so now we need to see if we get an assessment with OT and possible help again.  So many issues there not just handwriting.

 

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Holidays. and No Meds.

Week one is down of the Easter Holidays, I think it has gone well. Oliver is much more relaxed this holiday and some days he has asked not to have his meds, which I did agree too and all has seemed to have gone well, he didn’t focus on anything and moved from activity to activity quite a lot, and to others this could have annoyed them but it didn’t bother me or Oliver I knew the reason why and was happy he was happy and there is times when he has to deal with his condition without having meds, he can’t have them 24 hours a day. We didn’t have many meltdown either which has been great.

 

Also by not giving him meds, it gives Oliver a chance to deal with his condition and learn to cope with the symptoms and emotions that come with it (Sounds heartless I know) but I don’t want Oliver to always have his meds to deal with his condition, and shut it out, and also as the meds, suppress his appetite by no meds it gives him a chance to eat and gain so much needed weight, and eat me out of house and home lol.

 

I know there are some children that needs meds all the time otherwise they don’t cope and I am not against that, but as Oliver grows up he needs to learn and understand his conditions and he has to be the one in control of them, learning the times he needs meds, and what feelings come with things, One thing I wish I could understand and help him with but is something I will never be able to understand, only understand how I see it not him.

 

As a child grows up you need to begin to let go a little but still help and support and I would never allow Oliver to do something that would cause him distress and harm.

 

Even tho last week was quite chilled this week is starting on a different foot, Oliver is either coming down with an illness or he is beginning to fear the return to school. Such a shame if this is the case as he still has a week to enjoy but for our children the fear of school can cause us massive problems. It can ruin a day out, holidays from start to finish as the child knows they have time off but they have to go back to school at some point or it can be the other way around, the no routine and routine change from the no longer being at school in a structured environment knowing what will be coming next.

 

Well lets see what this week has in-store for us and also what will happen when we have the return to school.