Pro Active !!!!

May be just maybe school are finally learning to communicate, I know shock horror.

I got a phone call from Oliver’s tutor on Friday before Oliver had finished school to let me know there had been a incident in school between Oliver and one of his friends.  The incident at first was thought to be serious and the tutor got reports from others that were there and then he spoke to both boys together, after speaking to them it turnout that it was all a very big misunderstanding from both the boys and not helped by others getting involved and stiring things a little more. Once he had spoken to them they had realised the misunderstanding and  they had both gone back to lesson friends and happy.  But he called me to let me know what had happened and that it was sorted but he would keep and eye on things over this week.

I have never had a call like this and normally have to deal with Oliver in a bad way from whatever has happened once he is home, trying to piece information from him while emailing his tutor who can’t do anything as it’s the weekend and then have Oliver bad over the weekend stewing on things from the Friday before and him not wanting to go in on the Monday.  Thankfully the tutor called for this reason to let me know what had happened and that I didn’t need to be chasing school.

Thankfully Oliver came out of school happy and we briefly spoke about what had happened.

Some of the comments from the tutor however did concern me, in the fact he didn’t fully understand ASD and I had to point out that some of the things he was saying like not reading body language would be Oliver’s ASD.

But all in all a good step forward in communication and understanding, lets hope it can carry on.

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Chronic Pain

Dealing with Chronic Pain is tough especially been a 13 year old.

Since the summer and a change in schools, massive growth spurt which is still carry on and a horrid virus Rachel has been left with Chronic Pain.  With in the last few months she has had many GP appointments, resulting in X-rays, blood been taken etc and spells on the Children’s Assessment Ward even an appointment with Rheumatology.  All test have come back clear and left us if confusion and worry.  Rheumatology referred us to  Nuffield Hospital in Oxford and that has to be one of the best things.

After our first appointment it is believed Rachel has Chronic Pain, which doesn’t show up on any tests but thats not to say the pain isn’t real.  As the doctor explain it, it isn’t a hardware problem which would show up in tests but a software problem which won’t show up on tests.  Finally someone who understood and believed what Rachel was going through and we are parents didn’t feel fobbed off.

Rachel and ourselves attended a pain class today at Nuffield, to understand more about the condition,  I have to say the statistics are scary, Chronic Pain is more common in girls than boys and is so common, in a average secondary school about 10% of children have Chronic Pain and yet doctors struggle to diagnose it and children are pass to different doctors to find out what their symptoms are.  Doctors have a lack of information on the illness where they know all the signs of something as serious as Diabetes they don’t have that same knowledge of Chronic Pain and yet Chronic Pain is more common in children than Diabetes.   More research needs to be carried out in Chronic Pain to understand more the cause and why some children suffer and others don’t and what can be done to help that children, maybe even adults.  As for children it isn’t as simple as taking a pain relief tablet, as even the strongest of tablets won’t help.   While this is great for acute pain it doesn’t help on Chronic Pain, with all signal’s been mixed up.  Physio and OT along with seeing a doctors will help to resume a normal life and take baby steps on the way back to normality.  Rachel starts these appointments in March and we can only hope that slowly they begin to work for her.

The heartbreaking fact of today was the amount of girls in the class today, all with different types of pain and all with different stories to tell but all looking to ease the horrendous pain they are in all day everyday.   But with all the facts and advice today and the steps to help moved forward, we know its a long road to recovery and more importantly for all those girls there today, they were believed and not made to feel as some other doctors have that their pain doesn’t exist that it is all in the heads.

Remember to try and stay positive and that everything your going through is real.

 

Lets hope in the future more support and research is available for this to become ore known to doctors and more support is available in the form of classes today and special clinics.

 

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