Results, meeting and action.

OK, so I have been taking my time in writing this and thinking how best to put it or to get my head around things.

We received Oliver’s Educational psychologist report, while some things were expected some shocked to the core in a good way and bad way, some things went unanswered.

So Oliver had a reading, spelling and Mental Maths test done to start with,  we know he is below age on his spellings and school do units of sound to help him, so he is about 3 to 3.5 years behind.  Reading he is about 2 to 2.5 years behind but we don’t know how many years behind he is on his reading comprehension, however school have done a test for this and we are awaiting the results.  The Ed Psych did say his reading comprehension would be lower than a child of Oliver’s age due to his  ASD.  We know Maths is Oliver’s strong point more so his Mental Maths well the results came back as age 18+ yep you did read correctly 🙂  amazing and something to be so proud off and it has given him a little confidence boast.

However the working memory test was done in 2 parts and one part Oliver was average and the other he was well below average at the age of a 5 year, no wonder he struggles and can’t write anything from the board down in his book or homework planner, as once he has read it he has forgotten it.

The comments from his tutor hurt as he has always said everything is fine and even teachers at parents evening, but in the report not all is fine!  Oliver is very dependent on his teachers and his focus isn’t always good, if work isn’t good enough and teachers tell him he gets moody with them.  All this tho should be reported back to the SENCO which it isn’t so no wonder they are telling me there is no problems and making me look a negative parent when no one is talking to anyone. To top it all due to Oliver’s needs he is on the SEN register at school so they should know all this.

I was happy with the report but some concerns I had still haven’t been address such as English issues like SPAG and reading.  But we shall see how things go with that.

Recommendations have been put in the report and I really hope they are taken on board and put into action.

1. is teachers need to not comment on Oliver’s writing but to help him set it out in a neater way and accept his handwriting ways.

2. Smaller and clearer instructions have to be given to Oliver to help him work a little bit more independently and not be overwhelmed or not understand the task at hand.

3. More positive feedback has been to given to him but also why he is getting the good feedback, such as that is a good piece of work you have explain this very well.

4. He needs help with writing down the homework in his journal as he will miss information.

Along with more …

Since having the report and going through it I did email school to request a meeting which has now taken place.  The school were sorry for not picking up sooner Oliver’s memory issues which was good, at least now we know and we can move forward.  I did explain how I felt about the tutor comments and lack of communication with staff, and the not being honest with me.  I am hoping this is something they will address but time will tell.

Oliver in his primary school had aqua paper and reading ruler to help him which is something that was said in the report and now his school have given him both to use to see if it helps him this was given to him in the meeting and without me saying or asking for it, they acted on the report.

Oliver has been given a lamented list with some of the key recommendations for him to show his teacher every lesson to remind them of his needs and help Oliver to take and active approach to his learning.  Even tho the report has gone onto the system and key points has been put on to his notes and emailed out to teachers this list has been given to him to give them a reminder as teachers can forget with the volume of child they teach.

School are still awaiting the results of the reading test so as of yet we don’t know where we stand with this but once we have the results then it will give us a level and recommendations of books Oliver could be reading, which might help.

School are looking at a new structure to help with SPAG so once they know if they are going to use it, information will be coming home to help Oliver which is great.  It’s a once again watch this space…

Meetings will happen once a term now, to discuss concerns and to see the improvements and if anything needs to be changed, which is great going forward again.

I just hope teachers put into place the recommendations to help Oliver.

More so Oliver is still amazing and I am so proud of him, this report I just want to help him 🙂

 

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Half Term

I haven’t been able to blog for a while as it’s been half term and that can always keep us busy.  Well normally in half term we put Oliver into a football club to help him have routine and doing something he loves, this half term we choose to let Oliver chill out at home as he had been doing so much sport this last term we thought he his body would like some time off.

I think we were wrong, Oliver although he chilled out a lot and he was good, he missed have the routine and something to do each day.   He got bored very quickly, we did lots of dog walks to go out with the football and he even got his scooter back out this week which was lovely to see.  I don’t think his body liked not doing any sport either, and by yesterday Oliver was looking really down and fed up which he had been like that most of the holiday, but sometimes it takes us parents a while to workout what is going on when your child can’t explain anything to you.

One sure fire way to help was his dad was going to go for a run yesterday and Oliver wanted to go with him, and yet again he loved it and come back feeling much better.  So note to self book a football club in future holidays.

I am luckily that Oliver has an xbox but he isn’t happy playing on it for hours on end or his Ipad and that he would rather be so active.

One good thing too was he did some good homework, I gave him his tablet to do this to help and he had to do a drawing of Elizabeth 1, he did a good job and it was great for me to see him on his tablet and how it helps/doesn’t help.    We don’t medicate at home other than for clubs after school this is due to wanting Oliver to eat to help with his weight as his tablet can suppress his appetite.  So when I go to CAMHs I can’t always give the feed back on how he is and have to hope school are giving the right information.  Thankfully I have no concerns with his tablet at the moment 🙂

Pro Active !!!!

May be just maybe school are finally learning to communicate, I know shock horror.

I got a phone call from Oliver’s tutor on Friday before Oliver had finished school to let me know there had been a incident in school between Oliver and one of his friends.  The incident at first was thought to be serious and the tutor got reports from others that were there and then he spoke to both boys together, after speaking to them it turnout that it was all a very big misunderstanding from both the boys and not helped by others getting involved and stiring things a little more. Once he had spoken to them they had realised the misunderstanding and  they had both gone back to lesson friends and happy.  But he called me to let me know what had happened and that it was sorted but he would keep and eye on things over this week.

I have never had a call like this and normally have to deal with Oliver in a bad way from whatever has happened once he is home, trying to piece information from him while emailing his tutor who can’t do anything as it’s the weekend and then have Oliver bad over the weekend stewing on things from the Friday before and him not wanting to go in on the Monday.  Thankfully the tutor called for this reason to let me know what had happened and that I didn’t need to be chasing school.

Thankfully Oliver came out of school happy and we briefly spoke about what had happened.

Some of the comments from the tutor however did concern me, in the fact he didn’t fully understand ASD and I had to point out that some of the things he was saying like not reading body language would be Oliver’s ASD.

But all in all a good step forward in communication and understanding, lets hope it can carry on.

Confusion and gathering information

OK, so we are awaiting and Education psychologist report to come through with in the next week or two to find out were Oliver stands to what support he might need for school in core subjects.   This is a long wait might I had,  while also awaiting an appointment with Occupational Therapy.  This weekend I choose to help Oliver more with SPAG at home, giving him his tablet to help him focus we did a page of fractions (Maths being one of his faves this wasn’t a problem)   However SPAG was another thing all together, we did one page and he didn’t seem to get it.  I don’t understand how his English Teacher can say there are no issues and he can do more complex work when at home he can’t do the simple tasks,  we did Prefixes, so nothing major and he didn’t get some of it.   We even did his spelling homework, now for this all I do it make Oliver copy out the words three times, just copy from a sheet to writing them down and he was missing out letters. It’s like this in his homework diary he can’t seem to copy things word for word he misses out so much.  So if he can’t do this for writing out his homework and copying things at home, how can he be doing it in school?  Why has no one seem to pick up on this?  The more I think about the more I think he is going unnoticed in Class.

I though I would do some of t his work to one help Oliver and two to show the Occupational Therapist his handwriting and letter forming as that is one main reason we are awaiting an appointment, now I wish I had done this for the Educational Psychologist too to have examples rather than just speaking about it.

Oh well lets await a report and see what happens from there, maybe if it comes back he’s fine I will show school the work at home, but then when I look at his school work I can see the same things in there.

Maybe some of his teachers just can’t be bothered to understand and work with him?  Some are fabulous tho and a true credit to the profession.   Maybe the unhelpful ones shouldn’t be teaching?

I guess time will tell on how things go and in the mean time Oliver carries on struggling and losing interest in school, the scary thing is this could carry on, unless something changes.

Draining

OK, this could be long or short lets see with how the typing goes.

On Friday we had a meeting with and Educational Psychologist at school now our son already diagnosed with Asperger’s Syndrome, ADHD and Motor Dyspraxia.  But we feel school aren’t supporting his needs and in areas it’s our word against school so I guess to silence us they agree to bring in and Ed Psy to agree with them.   Now having a few of these meetings when our son was younger to get on the pathway to diagnoses what hard, they had their own ideas and didn’t really listen to us and someone from school was always in the meetings.

Well Friday it was just us no school staff and what a meeting, we told him of the conditions Oliver has and how school said there might be one more but he explained that is was just a label and not much medical or normal research had gone into the condition and there for he wouldn’t be saying he had it and it is link to another condition of Dyspraxia, now as he explain Oliver has Dyspraxia within the Motor side of things and for the first time he explained more about it and was surprised Oliver had been diagnosed with Motor Dyspraxia rather than just Dyspraxia, as the motor side is the most visible but its the brain side behind it.

We were able to say all our concerns about Oliver and the response we had from teachers and the school.  He made some many notes and it he agrees with a lot of things we said,  from what we had said he worked out the best assessments for Oliver to do with him.  We explained we think Oliver struggles with English and Science and how we think he might need 121 support for those subjects and we believe he struggles more in other subjects for for now our focus is core subjects.

We explained we had applied for and ECHP assessment and had been turned down and we wanted to know what support Oliver needed and what support we could get for him.  The assessments that were done with Oliver will decide if he is behind, needs support or struggles.  In the report it will tell us if an ECHP would be a good idea.

So after pouring your heart out and feeling emotional drained from it, we did come out feeling that we were listened too and not brushed off. So now we have the waiting game of getting the report back and we can have another meeting with him to discuss the report or change anything we think shouldn’t be on there.

For me I look forward to getting the report back and having a meeting with school on how best to support Oliver going forward.

Maybe I am being too hopeful and all will come back that there is no concerns and the concerns I have for Oliver at home with homework is not the same as school. So lets hold our breath and wait and see.

An ASD mind

How does an ASD mind work?

How can we enter their world to help them?

I don’t think we ever know, the reason for questioning it I guess is a small matter to me but massive to my son time and time again.   He was out with his football today and while playing with it his football has been popped, the devastation and upset this has caused and in the pasted is awful, as much as I can say don’t worry about it we can get you a new one, the hurt for him is awful we have had tears for a football.   He now doesn’t want to do anything and is downright miserable.

I guess when it’s their obsession and something breaks as part of that or goes missing they have to go through their own grieving stage. The broken football is now apart of a football display on top of his wardrobe and we await the arrival of the new football with the hope it will cheer him up.  With one football missing that isn’t to say he doesn’t have other footballs old ones which are still good to use but have been replaced with a newer model they are all in the cupboard awaiting to be used.   I guess the upset is over the fact that the popped ball is his newest one.

Anything with football that becomes old or broken tends to become part of his collection, unless he feels ready to let it go to another child, such as shirts, shorts and boots, but some remain apart of an ever growing collection.

I guess it is tough for us to understand their world, we can try as much as we like and we can help as much as we can but we never truly know what it is like for them to be them to live in a world they don’t understand, all we can do is love them and support them the best way we can.  In this case lots of hugs, listening and a place for the old football and a new one on the way.

When something goes right

A proud moment here, my son as you have seen from other posts loves football more than anything else.   To help keep in happy and active in the holidays he generally does a football holiday camp with Chelsea FC foundation, I have to say I loved them amazing coaches who go above and beyond with all children.  My son today was awarded the Head Coach Player of the week trophy today for giving it his all for the last four days.    He is so happy its unreal and really proud of himself and its helped his confidence today as well.  He always comes home having had a really good day, going over skills and then mini games in the afternoon, he’s always hot and sweaty from working so hard, but it shows that even with additional needs our children can still shine in a mainstream holiday camp.  He even does their invitation only club on a Friday evening and I am sure when he is back after half term he will go in with a little more confidence 🙂

 

Also on a positive note had to go to the GP for a referral to OT as school had requested it and the GP has done the referral for us. (yepiee) so now we need to see if we get an assessment with OT and possible help again.  So many issues there not just handwriting.

 

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