Nothing ceases to amaze!

Happy New Year.

Well it’s been a bumping few months, we have had other issues come back from seeing a ED Psy to now seeing OT and maybe a few more diagnoses will be coming our way.

We now know Oliver has problems with his short term memory, and school have updated staff and put things in place, Oliver now carries a card around with instructions on to show his teachers to remind them of his issues.  Lets see what time shall bring and if it works.

The Aqua paper is helping no end and now I believe instead of paper being stuck in to white page books Oliver has now been giving aqua coloured paper exercise books.  I believe this is only core subject at the moment but it is a step in the right direction.

As for OT what a great first appointment, we walked in and right way she wanted to assess Oliver for a sensory issue, just from his posture lol, (always been awful) I filled in a questionnaire while she did some assessments so we await the results of that. She did have a name for it but for the life of me I can’t remember it.   So the new condition could be something to do with sensory of joints?    I have to do sensory brushing on Oliver and at the moment he really doesn’t like the feel on it.   OT also did a perception test on Oliver, which has come back he has perception issues and now at home we have to encourage him to do word-searches, jigsaws and where’s wally books, to help improve his perception.

I have found out Oliver has a good pencil grip but he has weak hand muscles and we have had to get strong putty for him to play around with and help improve those, I have to say he loves the putty and uses it like a fidget toy. I wonder if he would be allowed to take it into school ?  Also Oliver’s bad handwriting could stem from the sensory side of things, who would ever have known that?

We have another appointment this month to one see how things are going with regards to the things we have been given now, and maybe for OT to do more assessments if she feels the need to or to get the report back and how we go forward in supporting Oliver.

So the OT’s aim is to do as many assessments as needed to get to the bottom of things so then when the time comes for exams etc we can apply for what ever Oliver needs and in the meantime we can get him the correct support.

As heartbreaking as it is, we are on the right road hopefully to getting the correct support for his needs, as support apparently isn’t needed to Asperger’s Syndrome and ADHD and Motor Dyspraxia !

Lets watch this space shall we, good luck in all your journeys.

 

 

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Results, meeting and action.

OK, so I have been taking my time in writing this and thinking how best to put it or to get my head around things.

We received Oliver’s Educational psychologist report, while some things were expected some shocked to the core in a good way and bad way, some things went unanswered.

So Oliver had a reading, spelling and Mental Maths test done to start with,  we know he is below age on his spellings and school do units of sound to help him, so he is about 3 to 3.5 years behind.  Reading he is about 2 to 2.5 years behind but we don’t know how many years behind he is on his reading comprehension, however school have done a test for this and we are awaiting the results.  The Ed Psych did say his reading comprehension would be lower than a child of Oliver’s age due to his  ASD.  We know Maths is Oliver’s strong point more so his Mental Maths well the results came back as age 18+ yep you did read correctly 🙂  amazing and something to be so proud off and it has given him a little confidence boast.

However the working memory test was done in 2 parts and one part Oliver was average and the other he was well below average at the age of a 5 year, no wonder he struggles and can’t write anything from the board down in his book or homework planner, as once he has read it he has forgotten it.

The comments from his tutor hurt as he has always said everything is fine and even teachers at parents evening, but in the report not all is fine!  Oliver is very dependent on his teachers and his focus isn’t always good, if work isn’t good enough and teachers tell him he gets moody with them.  All this tho should be reported back to the SENCO which it isn’t so no wonder they are telling me there is no problems and making me look a negative parent when no one is talking to anyone. To top it all due to Oliver’s needs he is on the SEN register at school so they should know all this.

I was happy with the report but some concerns I had still haven’t been address such as English issues like SPAG and reading.  But we shall see how things go with that.

Recommendations have been put in the report and I really hope they are taken on board and put into action.

1. is teachers need to not comment on Oliver’s writing but to help him set it out in a neater way and accept his handwriting ways.

2. Smaller and clearer instructions have to be given to Oliver to help him work a little bit more independently and not be overwhelmed or not understand the task at hand.

3. More positive feedback has been to given to him but also why he is getting the good feedback, such as that is a good piece of work you have explain this very well.

4. He needs help with writing down the homework in his journal as he will miss information.

Along with more …

Since having the report and going through it I did email school to request a meeting which has now taken place.  The school were sorry for not picking up sooner Oliver’s memory issues which was good, at least now we know and we can move forward.  I did explain how I felt about the tutor comments and lack of communication with staff, and the not being honest with me.  I am hoping this is something they will address but time will tell.

Oliver in his primary school had aqua paper and reading ruler to help him which is something that was said in the report and now his school have given him both to use to see if it helps him this was given to him in the meeting and without me saying or asking for it, they acted on the report.

Oliver has been given a lamented list with some of the key recommendations for him to show his teacher every lesson to remind them of his needs and help Oliver to take and active approach to his learning.  Even tho the report has gone onto the system and key points has been put on to his notes and emailed out to teachers this list has been given to him to give them a reminder as teachers can forget with the volume of child they teach.

School are still awaiting the results of the reading test so as of yet we don’t know where we stand with this but once we have the results then it will give us a level and recommendations of books Oliver could be reading, which might help.

School are looking at a new structure to help with SPAG so once they know if they are going to use it, information will be coming home to help Oliver which is great.  It’s a once again watch this space…

Meetings will happen once a term now, to discuss concerns and to see the improvements and if anything needs to be changed, which is great going forward again.

I just hope teachers put into place the recommendations to help Oliver.

More so Oliver is still amazing and I am so proud of him, this report I just want to help him 🙂

 

Half Term

I haven’t been able to blog for a while as it’s been half term and that can always keep us busy.  Well normally in half term we put Oliver into a football club to help him have routine and doing something he loves, this half term we choose to let Oliver chill out at home as he had been doing so much sport this last term we thought he his body would like some time off.

I think we were wrong, Oliver although he chilled out a lot and he was good, he missed have the routine and something to do each day.   He got bored very quickly, we did lots of dog walks to go out with the football and he even got his scooter back out this week which was lovely to see.  I don’t think his body liked not doing any sport either, and by yesterday Oliver was looking really down and fed up which he had been like that most of the holiday, but sometimes it takes us parents a while to workout what is going on when your child can’t explain anything to you.

One sure fire way to help was his dad was going to go for a run yesterday and Oliver wanted to go with him, and yet again he loved it and come back feeling much better.  So note to self book a football club in future holidays.

I am luckily that Oliver has an xbox but he isn’t happy playing on it for hours on end or his Ipad and that he would rather be so active.

One good thing too was he did some good homework, I gave him his tablet to do this to help and he had to do a drawing of Elizabeth 1, he did a good job and it was great for me to see him on his tablet and how it helps/doesn’t help.    We don’t medicate at home other than for clubs after school this is due to wanting Oliver to eat to help with his weight as his tablet can suppress his appetite.  So when I go to CAMHs I can’t always give the feed back on how he is and have to hope school are giving the right information.  Thankfully I have no concerns with his tablet at the moment 🙂

Pro Active !!!!

May be just maybe school are finally learning to communicate, I know shock horror.

I got a phone call from Oliver’s tutor on Friday before Oliver had finished school to let me know there had been a incident in school between Oliver and one of his friends.  The incident at first was thought to be serious and the tutor got reports from others that were there and then he spoke to both boys together, after speaking to them it turnout that it was all a very big misunderstanding from both the boys and not helped by others getting involved and stiring things a little more. Once he had spoken to them they had realised the misunderstanding and  they had both gone back to lesson friends and happy.  But he called me to let me know what had happened and that it was sorted but he would keep and eye on things over this week.

I have never had a call like this and normally have to deal with Oliver in a bad way from whatever has happened once he is home, trying to piece information from him while emailing his tutor who can’t do anything as it’s the weekend and then have Oliver bad over the weekend stewing on things from the Friday before and him not wanting to go in on the Monday.  Thankfully the tutor called for this reason to let me know what had happened and that I didn’t need to be chasing school.

Thankfully Oliver came out of school happy and we briefly spoke about what had happened.

Some of the comments from the tutor however did concern me, in the fact he didn’t fully understand ASD and I had to point out that some of the things he was saying like not reading body language would be Oliver’s ASD.

But all in all a good step forward in communication and understanding, lets hope it can carry on.

Battles with understanding in the wider world.

I am completely peed off today after seeing the most disgusting status on social media.

One person was angry with a teenager where they lived after they had apparently press all the buttons in the lift, this lead them to think it was acceptable to put a status up on social media calling that person a ADHD XXX and a retard along with other things.    Thank goodness other people along with myself replied with this is unacceptable and the admin took the post down.  However …

Is this right that a person should use this wording for teenager?   whether they are ADHD or not just because the peed them off.  NO!!!!  We as parents hope and pray and spend so much time trying to change the racism against our children and their conditions to have someone use it so causally.

What concerns me more if they are throwing these words around like no business and have children then their children will also pick up on the misconceptions of these conditions.  This adult clearly has no understanding of these conditions and that will carry on as clearly they seem like they never want to understand them.   We still face racism in all sorts in this day and age and it really shouldn’t be happening.

So how do we as parents deal with this?

How do you education the ones who don’t want to be educated?

How do we make the future better for our children?

The answers to above I have no idea, other than to keep doing what we are doing in the hope that one day it might all change and make it a better place for our children as adults and future children with these conditions.  To keep smiling at the people who choose not to understand not to move forward.

 

The thing is my son amazes me every day with his look on life and how he deals with things and he makes me to proud.

Feeling heartbroken and defeated at the moment.

 

x

 

 

Confusion and gathering information

OK, so we are awaiting and Education psychologist report to come through with in the next week or two to find out were Oliver stands to what support he might need for school in core subjects.   This is a long wait might I had,  while also awaiting an appointment with Occupational Therapy.  This weekend I choose to help Oliver more with SPAG at home, giving him his tablet to help him focus we did a page of fractions (Maths being one of his faves this wasn’t a problem)   However SPAG was another thing all together, we did one page and he didn’t seem to get it.  I don’t understand how his English Teacher can say there are no issues and he can do more complex work when at home he can’t do the simple tasks,  we did Prefixes, so nothing major and he didn’t get some of it.   We even did his spelling homework, now for this all I do it make Oliver copy out the words three times, just copy from a sheet to writing them down and he was missing out letters. It’s like this in his homework diary he can’t seem to copy things word for word he misses out so much.  So if he can’t do this for writing out his homework and copying things at home, how can he be doing it in school?  Why has no one seem to pick up on this?  The more I think about the more I think he is going unnoticed in Class.

I though I would do some of t his work to one help Oliver and two to show the Occupational Therapist his handwriting and letter forming as that is one main reason we are awaiting an appointment, now I wish I had done this for the Educational Psychologist too to have examples rather than just speaking about it.

Oh well lets await a report and see what happens from there, maybe if it comes back he’s fine I will show school the work at home, but then when I look at his school work I can see the same things in there.

Maybe some of his teachers just can’t be bothered to understand and work with him?  Some are fabulous tho and a true credit to the profession.   Maybe the unhelpful ones shouldn’t be teaching?

I guess time will tell on how things go and in the mean time Oliver carries on struggling and losing interest in school, the scary thing is this could carry on, unless something changes.